U of C Research Study seeks participants

My name is Camille Duque and I am working in conjunction with Amanda Lo and Kritika Sharma at the University of Calgary in the department of Community Health Sciences. We are currently seeking participants for two studies, and would appreciate your help!

The first is a study focused on research into the voices of adults with disabilities and whether they are being under-represented in research or overshadowed by the clearer voices of others. We hope this study will guide our understanding of ways to help adults with disabilities direct their own lives.

Research on Voices of Adults with Disabilities- Poster

Please see the attached invitations for more details, and feel free to contact me at cvduque@ucalgary.ca for more information or to participate!

Thank you,

Camille

Community Rehabilitation and Disability Studies
Department of Community Health Sciences
Cumming School of Medicine, University of Calgary

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Media Release: Ledcor Group elevates Down syndrome fashion show

MEDIA RELEASE

Ledcor Group elevates Down syndrome fashion show

For Immediate Release
July 27, 2015

(Edmonton, AB) The 4th Annual Uniquely Me Fashion Show & Fundraiser Gala is getting a lift from Ledcor Group and Qualico Commercial, with a move to the 16th Floor of the EPCOR Tower. The gala will be held Thursday, Sept 10 at 7 p.m. and will feature models with Down syndrome and their celebrity friends and supporters wearing couture by local designers.

The fashion show raises awareness of the unique abilities of persons born with Down syndrome, and funds for the Edmonton Down Syndrome Society (EDSS). After the incredibly successful shift in 2014 to haute couture and unique experiences in the host venue, event planner, PlanIt Sound Inc., have once again brought something new to the audience.

“This is an extraordinary event with a billion dollar view,” says Ambere Rosborough, Executive Director of EDSS, referring to the significant projects being developed on every side of the tower, including the new arena, Rogers Place. “The entire floor is raw space, with a 360 degree view of the city. Concrete floors, metal framing, it represents the potential of transformation.”

The 90’s theme reflects EDSS’s 20 year anniversary as a registered charitable society, and a time in history when significant medical breakthroughs happened, making room for a shift in perspective and consideration for persons born with Down syndrome.

With over half the tickets already sold, and sponsorships from respected organizations like Ledcor Group, AltaPro, Daytona Homes and Qualico Commercial, Rosborough doesn’t expect any empty seats.

“It is with great pride that our self-advocates take the stage, and we are really pleased to be able to provide them this opportunity. There has been a lot of international profile lately for individuals with Down syndrome, building businesses, taking the spotlight as actors and models, and being role-models, for the developmentally disabled and the  neurotypically developed alike,” says Rosborough. “We are all inspired by the courage our models with Ds reflect when they face their fears and pursue their dreams.”

Style-icon Sarah Chan is again chairing the event. She will be walking the runway with other local celebrities like Oiler wives Jenny Scrivens and Krista Ference, CTV personalities Stacey Brotzel, Erin Isfeld, Kimberly Wynn and Rob Williams and Gayle Krupa from the Edmonton Down Syndrome Clinic at Stollery Children’s Hospital.

Tickets are $130, and can be purchased online at www.edss.ca/Uniquely-Me

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 About the Edmonton Down Syndrome Society

The Edmonton Down Syndrome Society (EDSS) is dedicated to improving the lives of individuals born with Down syndrome. We provide opportunities and experiences for our members to learn, grow and strive for their individual potential in home, school and community life. EDSS believes in the power of generosity to change lives. Established in 1995 and governed by a volunteer Board of Directors, it is a not-for-profit charitable organization.

For more information please contact:

Melanie Watson
Communications and Business Development Manager
Edmonton Down Syndrome Society
780.944.4224 ext. 225
www.edss.ca
melanie@edss.ca

Rowena Cui
Event Producer – Uniquely Me 2015
PlanIt Sound
780.718.7561
www.planitsound.com
Rowena@planitsound.com

Download pdf – MR – Ledcor elevates Down syndrome Fashion show – July 27 2015

Baby / Toddler Drop-in expanded for summer

Our Baby / Toddler Drop-in program has become very popular in the past six months, so in recognition of the need for a cool, dry place to hang out once in a while, we are expanding our program to every weekday for the summer.

July 6 – Aug 28, 2015
Mon – Fri; 9 am – 12:30 p.m.
Bring your lunch or snacks
Coffee and Juice provide

Please note: Monday, Aug 3 – CLOSED for Stat

 

NEW! Support Group for Parents Of Young Adults with Down Syndrome

Parent and member, Kate Harrington (mom of Zoe Heide) would like to facilitate a Parent Group for members with young adults aged 14 to 30+. The purpose of the group is to provide support, encouragement and share information between parents who are facing, going through and have transitioned to the adult world of developmental disability.

The group will be a safe place to tell your stories, express your frustrations, share your triumphs and learn from each other so we all don’t have to take this journey alone.

We expect to meet for two hours, one evening per month at the EDSS office

Welcome Social – Tuesday, July 15 7 – 9 p.m.

Join us for light refreshments and a brief sharing circle, to learn more about this group.  Please RSVP and feel free to bring a friend.

 

Freewill Shakespeare Festival – Summer 2015

The Freewill Shakespeare Festival is a not-for-profit organization that produces two Shakespearean plays for production in Hawerlak Park’s Heritage Amphitheatre each year. For 25 years, they have explored Shakespeare’s works, creating vibrant and engaging productions that bring Shakespeare’s humanity to the modern stage. This year they are presenting ‘As You Like It’ and ‘Coriolanus’ from June 23rd to July 19th.

An important part of their mandate is to keep the festival accessible to all audiences regardless of age, ability, education or income levels.

They have a very generous offer for our members.

Pay-What-You-Will performances. For both preview performances (June 23/24) and every Tuesday evening and Saturday matinee, guests can come for little as a dollar, or even a quarter.

They are happy to organize arrange seating for our group with advance notice for any of those performances.

Call for Volunteers

Our next EDSS casino been granted for Saturday, September 12 and Sunday, September 13 at the Palace Casino in West Edmonton Mall.  The proceeds of this casino go directly to support our speech therapy programs and occur only once every two years.  This year we should realize close to $80,000.

We are looking for volunteers to occupy all positions over the two day period. Attached, please find the list of positions and the time schedule. No real experience is necessary; we have great advisors to help us throughout the two days.  To note, the hours which the tables are open for gaming have been extended, with gambling commencing at 10 am and closing at 3 am. All shifts have changed since our last casino.  Gail Faulkner will be coordinating all of the volunteers, please contact her directly. Volunteers receive a meal during their shift, and the food at the Palace is really pretty good. Gail will answer any questions you may have and sign you up.

Thanks so much for volunteering!

Schedule of Casino Volunteer Workers

Schedule of Casino Volunteer Workers

Will learning signs delay my child’s speech?

From the Signing Time™ website

Many parents fear that signing will delay or further delay speech. The experience of families who sign with their children is quite the opposite.

Signing Time has received endorsements from speech and language pathologists and other specialists encouraging the use of sign language with all children. Signing and using gestures to communicate is natural. Waving “bye bye”, pointing, and reaching arms up are simple signs used by most children.

Rachel Coleman, co-creator of Signing Time said, “When we found out Leah was deaf, many people warned us to be careful with signing. They said, ‘If she gets too comfortable signing, she will never speak.’ Their intentions were good, but they were absolutely wrong.

“Luckily, we first gave Leah a complete language in signs, only then was she able to take time to work on the skill of labeling those signs through her speech. English is a language. American Sign Language is a language. Spanish is a language. But speech, it is a skill.”

Giving your child a language before they are able to master the skill of verbal communication can help reduce your child’s frustrations. Signing also involves parents in a fun and easy way to help support communication goals at home.

Signing makes communication possible – or easier. Signs can be used as a primary communication tool, or to help clarify spoken words. If your goal is communication, then signing can meet that need before your child is developmentally able to speak.

Why Teach your Baby Sign Language?

From the Signing Time™ website

When children’s hands are moving, their minds are learning.

Children are able to understand language as early as 6 months, but the ability to speak requires complex fine motor skills that don’t develop until much later. The result is a frustration and tantrums.

On the other hands, the motor skills required to use sign language develop much sooner than spoken language.  Children who learn baby sign language can start using signs as early as 6 to 9 months! The result is a baby who can express her wants and needs.

For babies, sign language is a visual language. Many basic signs resemble what they mean. For example, to sign ball, you show the shape of a ball with your hands. See some examples on our Baby Sign Language Dictionary. This makes sign language fun and easy for kids.

Teaching your baby sign language can unlock the world around them and give their minds a head start.

  • Open a window to your child’s heart & mind
  • Reduce tantrums & increase bonding
  • Build vocabulary & instill confidence
  • Cognitive benefits of being bilingual

Moms Group and Dads Group

These are fun evenings where moms or dads get together to share advice and stories. They are informal gatherings, ranging in group size, and may involve an activity.  This is a group for parents but babes in arms are welcome.

Contact the office for more information: 780-944-4224

Mom’s Group Schedule – 2015

Friday, Mar 27, 2015 – Host Valerie Myrmo

The next Mom’s Night Out will be hosted by Valerie Myrmo at her home in Millwoods, located at 3432-78 Street on Friday, March 27. Please RSVP, vmyrmo@live.com before Wed. March 25.

Dedicated to improving the lives of individuals born with Down syndrome