Members Connecting and Sharing – Panel Discussion

Learning Session – Jan 10, 2015

This learning session is designed to give members the opportunity to network with other members and share personal joys, questions and frustrations that we all experience living with a family member with Down Syndrome.

We have set up a panel consisting of parents and adults with Down Syndrome representing all our age groups who would like to share some of their experiences and stories with you. This will be a great opportunity for you to ask questions of these members who have been through situations that you may be experiencing now or are questioning as you look towards what lies ahead.

Topics dealing with education, health, therapy, and respite can be overwhelming at times and this is an opportunity to gain insight from someone who has gone through similar situations and gained valuable insight along the way. Just hearing another person’s experiences can help us to remember that we are not alone, nor are we reinventing the wheel.

No two journeys are ever the same, but we hope this session will help you to realize that you are not alone on this journey.

Free child care is available for members, but pre-registration is required.

Select your session:*
Childcare required:
Number of children and ages:


A visit with Santa

Santa will be making a special visit to the EDSS office on Saturday,  December 20th from 10 am until noon.

Please RSVP to meghan.mcnalley@ngps.ca with your child’s/children’s name(s) and age(s) so Santa can come prepared and sign up for a time slot (we will be booking approximately 5 min per child).  There will be an elf to take your pictures and she will email them to you, but you are more than welcome to bring your own camera. There is also a photographer willing to take pictures for a small fee. Please let me know if you are interested in her services and I will give you her contact information. The playroom will be open before and after for you to enjoy while you wait.

Parent's name*
Please select your time:*
Name and age of each child, separated by a semi-colon;*
Any questions or concerns:
2015 calendar

2015 CDSS Calendars on sale now

2015 calendarSupport the Canadian Down Syndrome Society with our annual calendar.

Full of the smiling faces of some of our members, this calendar is ideal for home, work, and as a thoughtful holiday gift. The calendar includes 14 months (November/December 2014 and 2015).

 The calendar measures 11×8.5 when closed, making it easy to mail and distribute. All proceeds from the sale of the calendar go to providing information, advocacy and education about Down syndrome to all Canadians.

Price: $15.00 per calendar

PLAN Edmonton

Meloney Patterson of PLAN Edmonton. http://planedmonton.ca/

She will be sharing more about RDSP and how PLAN Edmonton can help individual and families.

The Planned Lifetime Advocacy Network (PLAN) Edmonton is a non-profit charitable organization that supports individuals living with physical, mental and intellectual challenges and their families by facilitating social connections and intentionally building authentic relationships. We are a family directed organization that supports families through the development of a social and supportive network for their family member.

Select your session:*
Childcare required:
Number of children and ages:

Spencer West to speak at the Canadian Down Syndrome Conference

The Canadian Down Syndrome Society is proud to announce Spencer West, activist, author, and renowned inspirational speaker will be joining us as Keynote speaker at the 2015 Canadian Down Syndrome Conference in Edmonton. The Canadian Down Syndrome Conference celebrates people with Down syndrome, their families, and professionals in the Down syndrome community.

Inspirational and charismatic, Spencer West is candid about the struggles he overcame after losing his legs at the age of five. Whether headlining corporate conferences, filling stadiums, or leading volunteer excursions for youth and adults in Kenya, Ghana and India, Spencer’s words have encouraged millions to stand up to difficult times, face challenges, embrace change, and learn the tangible skills each one of us can use to redefine what is possible both for organizations and individuals.

His many accomplishments, played out on the global stage, led him to teach others to redefine what is possible in their own lives.

Spencer’s inspirational life story will help us kick off our great conference weekend. More exciting announcements regarding speakers, registration, and panels will be made at www.downsyndromeconference.ca soon!

We look forwarding to welcoming all of you to the Canadian Down Syndrome Conference, May 15 to 17, 2015 in Edmonton!

Tanya Ponich – Life Rewards Action

Tanya - Website LaunchLast week, self-advocate and EDSS member Tanya Ponich spoke to a room full of people at the launch of her website “Life Rewards Action”. Through this website and her public speaking Tanya greatest desire is to inspire people from all walks of life that if they stop and really listen, we all have so much to learn from people born with developmental disabilities.

When asked about her launch, taking it all in stride, Tanya said “I am blessed to have people so many support me in my dreams and because I have support I can continue to on my life path of giving people hope”.

You can check out her website at liferewardsaction.ca

Ortona Gymnastics – Special Needs Program

The Ortona Gymnastics Club has expanded their Special Needs program to include children with Down syndrome and other special needs.

Originally developed in cooperation with the Centre for Autism Services Alberta, the goal of this program is to provide children with special needs with the skills necessary to participate to their fullest potential in a gymnastics class.

Registration is now open for the Winter session:

Ortana Gymnastics (under Gymnastics for all, click “Special Needs”)

Dedicated to improving the lives of individuals born with Down syndrome